Up until Billy started school, he unfortunately suffered with ongoing tummy issues that resulted in what felt like constant diarrhoea.
At birth it was put down to a milk intolerance, then his liver condition, after transplant we moved to thinking it was his magnesium supplement, after this was weaned, Cancer got in the way a little.
So, for a while the tummy issues become a secondary problem while the team focused on this god forsaking demon.
But, in August 2022 when life had settled a little and a new concern became apparent, the lungs, we made a discovery that Billy may have GORD’s.
So, just like that, Billy started Omeprazole and was later formal diagnosed in the November that year.
This little red pill was a miracle, after 5 years of waiting, the poop dried up to 1 or 2 beautifully formed textbook stools!
Hallelujah for this discovery and this new beginning.
This somewhat small discovery, opened a door of opportunity for Billy.
Potty training.
The words that once felt cruel to mention was finally a reality.
So, by the Christmas holidays we decided to take the plunge, Billy was moderately enthusiastic due to the new Thomas the Tank Engine pants that he wore more on his head than his bum.
His late exposure was a big mountain to climb, so he returned to school in pull ups.
As Billy was in the minority, most educational settings are not as well set up as nurseries for this type of training.
The children are expected to move locations to find their toilet, undertake this independently and ask before leaving their safe environment.
Not so easy when you need a wee urgently, or a poo!
By March Billy was dry at home, but school was still causing problems.
Since January there have been many attempts to chat to Billy about this, but he hasn’t been able to vocalise an answer or says, ‘I don’t know why I do it’.
But, on the 23rd March Billy let me in by telling me a story.
Billy explained that he has a little man that lives in his head, most of the time he’s there to help him get things right, but sometimes he gets distracted by the TV he likes to watch.
So, when the little man is distracted by the wonders of the live TV, he forgets to let him know that a wee is on its way.
I asked Billy about the differences between home and school?
Billy said, the little man doesn’t watch live TV at home and looked at me with a face of, isn’t this obvious.
Billy became sad and started to look at the floor and said I know I can do it, it’s just hard when there so much more fun things to be doing.
So, this morning after a chat, he decided the TV needed to go.
By 7.30am Billy and I were standing to attention in the down stairs loo conducting a ceremony, the TV was pulled out of his ear and dropped down the flushing toilet with the words said ‘Good bye’!
Remember you may not feel strong but you are.
Love
The Rose-Tinted Mum
The Rose Tinted mum 